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Life is complicated. Death is complicated. Sibling relationships are complicated. Love is complicated. Creating our own physical and emotional health is complicated. Putting up 'boundaries' is complicated. Having a schizophrenic brother is complicated. To be honest, sometimes I am just really `gosh darned` tired of how freaking complicated it all is. But we can`t give up right? or so I am told by good friends.
Who is a person's brother to them? For every person it is a different relationship, as unique as the individuals involved and the circumstances of life they find themselves born into. Some of us don't even have a brother, so perhaps they dream of an idyllic relationship with the brother they wished to have had, sort of like a single person dreams of an idyllic relationship with a partner they wish for. In my case I had a real brother, a complicated one. I arrived in this world two years and three months after him. It was just John and Kristin until seven years later when we both won the lottery with the arrival of our surprise baby sister Katie.
My older brother's hand was probably the first I ever held on a regular basis, but only when we were terribly small toddlers, as ours was not to be an affectionate or pleasant relationship. I adored him, but the feeling was never mutual. I like to think that during the short time when I was still a baby that my brother John didn't mind me, because from my earliest recollection, my brother did not like me at all, ever. My brother was a reserved and intelligent person, and although wonderfully friendly to others, it was no secret that I was his nemesis. I was an overtly expressive little girl who received a lot of attention from strangers over my beautiful coloured eyes and my avid interest in connecting with the people who crossed my path. But as far as my intellect, I was never in the running for any sort of academic awards and my brother`s aptitude in math was always a great mystery to me.
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| my eyes forty years later, surrounded by the beautiful eyes of younger women on niijima |
In our teens my brother was wonderful with our grandparents and all older people, whereas I loved children and thought elderly people were grey haired kill joys. John and I were night and day. Probably the only thing we shared was our love for and giftedness in music, something that our baby sister Katie would also inherit from both of our ill matched and soon to be divorced parents. But John even hated the way that I sang and used to scold me for it. Now that he is dead, I think I can safely say that I really don`t think there was one thing that my brother John ever liked about me, except that I moved to Japan.
In 2010 when I moved to Japan and my brother John said goodbye to me, he gave me a large and genuine hug. It surprised me. We had long ago negotiated an unspoken truce between us, but when I left for Japan I could actually sense his sincere well wishes for me as I embarked on my great adventure to a country that my family has always had a love for and fascination with. Twenty seven years ago John had embarked on a similar adventure. He went off to Europe and North Africa and worked in England in order to explore and make his own way in the world. It was during his two year international adventure that his schizophrenia appeared, the mental illness that he would suffer from for twenty five years. Schizophrenia, the medical condition that would isolate him from his friends and his dreams and his aptitudes and his potential for success.
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| family send off to tokyo october 2010, the day i got the HUG |
If I had thought that John`s and my relationship had been challenging when we were kids, our relationship as he navigated every day with a devastating mental illness, was even more difficult. But we kept going. We were a brother and sister with completely opposite lives. I had the weight and wealth of responsibilities of raising four children at a very young age, my fourth child was born to me when I was only 24. John had the responsibility of trying to stay alive, and managing his episodes of psychosis, followed by a strict regime of medication and dealing with their many side effects. I watched his journey, he watched mine. We were brother and sister, two years and three months apart.
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| 24 and 26, a mother of four and a young man after five years of schizophrenia |
The misfortune and losses of my brother`s life are too extensive and depressing to fully list, but I was witness to how he kept going. The fact that he carried on despite of everything was ultimately how he won my admiration. It was the most difficult on my mother who would become repetitively distressed as she witnessed her son`s world becoming smaller and smaller. She was understandably tortured by the upset of him suffering from the medication side effects of his parkinsons like tremors, shaking so badly that it was hard for him to feed himself, in additional to the diseases of cancer and diabetes which were added to what John had to deal with. What upset her the most was that he spent almost all of his time alone. I don`t know when we all understood and accepted that John would never finish his degree in sociology, or have a proper career worthy of his intellect, or raise a family, or be fit and healthy and play music the way that he used to. It was one loss at a time. I guess we all just kept going.
Something that has been interesting to me since John`s death is realizing what happens when a family group carries a member who is sick for many years. When that family member dies without warning, the group is disorientated. That person who needed us, to whom we were so important to has suddenly vanished. Twenty five years of our family group`s journey has included taking care of, and including, and being concerned about a person who was mentally ill. By his death, although it was of natural causes, the physically weakest person in our family group who in some ways defined us, has abandoned us. What do we do now without our person to carry? Who are we without our John?
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Now that my brother`s life journey is over and the story of his spirit has been told, it feels like I have a greater amount of responsibility to tell the stories that are mine and yet to unfold. John`s death at 46 sent me into a crisis about my own life, about where I should be, and about what I should be doing with the story of life that I have been given to tell.
I had to take everything apart and figure out if I should return to Canada to be with my family in the immediate coming years, or if I should stay in Japan. It has been a long long time since my big brother John has held my hand, but by him leaving this world last month, as I faced a future without him, my hand has never felt emptier.
So there I was on Niijima at a Hula Hooper retreat in one of the most beautiful settings in the world, trying to sort out what to do with my life again. Fortunately I was with my Jewish friend Liane Wakabayashi, an artist and a writer who created the Genesis Cards. The Genesis Cards are these wonderfully beautiful tools that can be used to facilitate creativity and life direction through the intuitive process. http://www.genesiscards.com/ With the Genesis Cards Liane patiently helped me use my intuition to map out my life direction.
My assumption that I should leave Japan was clarified as a ruse. I will stay in Japan. It seems that I have more stories to live out in this great country. I feel grateful and excited for all that comes next for me, even though I also feel deep sadness that I don`t have a brother back home anymore. Keep going sister. That is how I feel about my life when I think of my dearly departed brother John. In the beauty of the earth I hear John saying `Keep going sister.`
The music festival on Niijima with the surfers and the hoopers
My younger sister`s song `If I`m not Dead`with her band Pawnshop Diamond in Vancouver
top photo gratitude to Rob Moreno
